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FRIDAY, SEPTEMBER 20, 2024
Note: the schedule grid is best viewed in landscape orientation on mobile devices and may require zooming to get entire grid visible.
Sessions in red text are eligible for continuing education credits.
For a printable agenda, please click here.
| TIME | EVENT & DESCRIPTION | SPEAKER(S) / LEADER(S) | ROOM |
|---|---|---|---|
| 8:00am-12:00pm | Pre-Conference Workshop: "Narrative Neuropalliative Care: Workshop in Writing and Reading Skills in Clinical Care" | Jocelyn Jiao | Library |
| Pre-Conference Workshop: "Palliative Care for ALS: Charting a Path Forward" | Kara Bischoff Ambereen Mehta |
Willow West | |
| Pre-Conference Workshop: "From Surviving to Thriving: The Role of Rehabilitation Specialists in Neuropalliative Care" | Sandhya Seshadri | Willow East | |
| Working Group: Non-Profit Organizations and Neuropalliative Care | Benzi Kluger | Board Room | |
| 12:00-1:00pm | Lunch | Board Room | |
| 1:00-5:00pm | Working Group: Defining a Neuropalliative Care Fellowship Track | Paul Vermilion Jessica Besbris |
Board Room |
| Pre-Conference Workshop: Mastering the 5 Pillars of Neuropalliative Care for Parkinson's and Related Conditions | Benzi Kluger Christina Vaughan |
Willow East | |
| Pre-Conference Workshop: Spiritual Care | George Fitchett Dirk Labuschagne Sue Ouellette |
Library | |
| Working Group: Patient/Family Advocacy | Malenna Sumrall Jennifer Corcoran |
Willow West | |
| 5:00-7:00pm | INPCS24 Welcome Reception | Fireside Room |
SATURDAY, SEPTEMBER 21, 2024
Note: the schedule grid is best viewed in landscape orientation on mobile devices and may require zooming to get entire grid visible.
Sessions in red text are eligible for continuing education credits.
For a printable agenda, please click here.
| TIME | EVENT & DESCRIPTION | SPEAKER(S) | ROOM |
|---|---|---|---|
| 7:30-8:30am | Breakfast On Own | Hotel Lobby | |
| Optional Breakfast Symposium - Presented by Neurelis "Rapid, Reliable, and Ready Seizure Rescue for Episodes of Frequent Seizures" Hot breakfast provided |
Rohit Marawar, MD, FAES Wayne State University School of Medicine Department of Neurology |
Willow | |
| INPCS Membership Committee Meet and Greet | Library | ||
| 8:30-9:00am | Welcome/Opening & President's Address | Benzi Kluger | Great Hall |
| 9:00-9:30am | Neuropalliative Care Advocates of the Year Award Presentation to Malenna Sumrall and Kirk Hall "Advocating for Advocacy: The Evolution and Future of Neuropalliative Care Advocacy" In this talk, Malenna and Kirk will briefly describe their individual and shared journeys as advocates, what they’ve learned, how they’ve benefitted, and why they keep doing what they do. They will talk about where INPCS is now in terms of advocates, and then talk about where they see advocacy headed in the future, along with their recommendations. |
Malenna Sumrall Kirk Hall |
Great Hall |
| 9:30-9:45am | Break | Fireside Room | |
| 9:45-10:45am | "Grief Connects Us: Integrating Palliative Care Principles into Neurosurgery" While practicing as a neurosurgeon, I came to appreciate how profoundly disruptive illness and death can be (and how I fell short as a physician and human being), through my sister Victoria's diagnosis with AML, bone marrow transplant and death, followed by her husband Pat's death from a ruptured cerebral aneurysm, orphaning their two sons. I wrote Grief Connects Us: A Neurosurgeon's Lessons on Love, Loss, and Compassion, then trained in Palliative Care (PCEP). In collaboration with Palliative Care colleagues, we have developed a communication training program for neurosurgeons based on Vital Talk and are working towards integrating Palliative Care into Neurosurgery. We performed the first-ever course on Palliative Care for neurosurgeons at AANS in Chicago this May. I am working to create a section of INPCS for neurosurgeons. Through grief, I have found purpose and community. I hope to be the change I want to see. |
Jody Stern | Great Hall |
| 10:45-11:00am | Break | Fireside Room | |
| 11:00-11:30am | State of the Science: NeuroCARES 2024 | Claire Creutzfeldt | Great Hall |
| 11:00am-12:00pm | Outstanding Scientific Contribution Award Presentation to Lesli Skolarus "Preferences and Advance Care Planning Among People Who Have Had a Stroke" |
Lesli Skolarus | Great Hall |
| 12:00-1:00pm | Lunch | Fireside Room | |
| Optional Lunch Symposium - Presented by Acadia Pharmaceuticals Inc. "The First-Line Prescription Treatment for Hallucinations and Delusions Associated With Parkinson's Disease Psychosis" Hot lunch provided |
Angela Hardwick, MD | Willow | |
| 1:00-2:00pm | Poster & Exhibit Hall Time | Fireside Room | |
| 2:00-3:00pm | Panel - Coastal Mitigation: Preserving Personhood in ALS Through an Interprofessional Approach This session will focus on the role of the interdisciplinary team within an ALS clinic. Through a shared patient experience and an expert panel, we will discuss ways to support patients and families within clinic visits, but also in the community through local grassroots efforts. |
Joel Phillips, Moderator Margaret Szarowicz Andréa Vugteveen Katie Dabkowski Mindy Emerson Sarah Perks Cathy Chalmers |
Great Hall |
| 3:00-3:15pm | Break | Fireside Room | |
| 3:15-4:15pm | INPCS Lifetime Achievement Award Presentation to Roop Gursahani "Advocacy and Neuropalliative Care: From Aruna's Story to Mine" Advocacy is a significant part of neuropalliative care and needs training and orientation. Opportunities are often serendipitous. I speak of my own experience in working for advance care planning, end of life care and neuropalliative training in India. |
Roop Gursahani | Great Hall |
| 4:15-4:30pm | Break | Fireside Room | |
| 4:30-5:30pm | “Social Determinants of Health in Neuropalliative Care” This session will explore the impact of social determinants of health on individuals with neurological disorders and their families. Attendees will gain insights into the key social determinants that significantly influence neuropalliative care patient and family experiences and outcomes, with a focus on health inequalities and disparities. Through the presentation of case studies and examples, the session will highlight the urgent need for a comprehensive approach to patient and family care that addresses social factors. |
Karla Washington | Great Hall |
SUNDAY, SEPTEMBER 22, 2023
Note: the schedule grid is best viewed in landscape orientation on mobile devices and may require zooming to get entire grid visible.
Sessions in red text are eligible for continuing education credits.
For a printable agenda, please click here.
| TIME | EVENT & DESCRIPTION | SPEAKER(S) | ROOM |
|---|---|---|---|
| 7:30-8:30am | Breakfast on own | Hotel Lobby | |
| INPCS Research Committee Meet & Greet | Willow East | ||
| INPCS Strategic Communications Committee Meet & Greet | Willow West | ||
| INPCS Education Committee Meet & Greet | Library | ||
| 8:30-9:00am | Live Poster Showcase | Jennifer Corcoran Joshua Davis Arden O'Donnell |
Great Hall |
| 9:00-9:30am | Tara Cook Award for Innovation in Neuropalliative Education Presentation to Piret Paal "Cultivating Excellence in Palliative Care Education and Training" This presentation addresses various local and national challenges in palliative care education, emphasizing the importance of establishing a strong foundation for both academic and clinical training. Highlighting recent projects that exemplify excellence in collaborative research, Piret will discuss how these initiatives drive progress in palliative care education and training worldwide. The focus will be on the lessons learned from these efforts. |
Piret Paal | Great Hall |
| 9:30-9:45am | Break | Fireside Room | |
| 9:45-10:45am | "Spirituality in Serious Neurologic Illness" In July 2022 JAMA published a systematic review of over 300 high-quality articles about religion/spirituality and serious illness (Balboni et al., 2022). Based on this review a panel of experts recommended that healthcare organizations routinely incorporate spiritual care into the medical care of patients with serious illness. In this presentation Dr. Fitchett will review some of the research that contributed to this and other recommendations and discuss their implications for our care of patients with serious illness and their loved ones. |
George Fitchett | Great Hall |
| 10:45-11:00am | Break | Fireside Room | |
| 11:00am-12:00pm | "Goals and Preferences for Life-Sustaining Treatments Across the Illness Journey" This session is an overview of the complexities that affect decisions regarding life sustaining therapies in neurologic illness. We will examine factors that influence decisions and how these factors may vary in different illness trajectories. |
Farrah Daly Christina Faull |
Great Hall |
| 12:00-1:00pm | Lunch INPCS Business Meeting & Town Hall ALL ATTENDEES ARE WELCOME! |
Great Hall | |
| 1:00-2:00pm | Poster & Exhibit Hall Time | Fireside Room | |
| 2:00-3:00pm | "Caregiver Assessment and Support in Neurologic Illness" This presentation will cover the complex care experience for family caregivers using statewide data from the CA Caregiver Resource Centers (CRC), a service system for adults with dementia, stroke, Parkinson's, head injury and related cognitive disorders. Information presented include caregiver characteristics, diverse populations, services provided, outcomes for caregivers and promising policy changes for inclusion of family caregivers within health care pilot projects and CPT codes for services for this population. |
Kathleen Kelly Christina Irving |
Great Hall |
| 3:00-3:15pm | Break | Fireside Room | |
| 3:15-4:15pm | "A Palliative Care Approach to Neuropsychiatric Symptoms in Dementia" In this talk Dr. Kluger will provide an overview of a palliative care approach to neuropsychiatric symptoms seen across a wide-range of neurologic disorders including psychosis, agitation, and apathy. Core aspects of this approach that will be covered include being systematic in screening for symptoms, being explicit and compassionate in talking about symptoms, prioritizing safety for patients and family, starting with behavioral approaches, and medication management. |
Benzi Kluger | Great Hall |
| 4:15-4:30pm | Closing Remarks: Conference Retrospective Prize Giveaway INPCS25 Reveal |
Heather Leeper | Great Hall |
